Today we will arrive in Rukum, traveling through Lamahi, Ghori, Tulsipur, Shitalpati, and Kotmola before reaching our destination of Jumlikhalanga. Here we we will visit the local district hospital to identify areas of need. Our meetings with the NRC and the district officer Mr. Bharat will help us understand more about the infrastructure in the region and determine where we can travel to and how we can get there.
On our way to Jumlikhalanga, we visited the Nepali Youth Foundation (NYF) nutrition center in Ghorani. The center admits malnourished children and their mothers for free for periods of around three months while the children are nurtured back to health. During this time, the mothers are educated on how to cook inexpensive but nourishing food.
During our trip, we will work with the NYF to identify malnourished children, who will then be transported to the center with their mothers free of charge.
Around the world LEGO Company is famous for inspiring creativity through play. Nowadays LEGO is also being used widely for educational purposes. In Tanzania, I found a new use of LEGO that I would have never imagined possible.
This summer I was one of six students from EWH DTU participating in the annual Engineering World Health Summer Institute in Tanzania. We brought 27 kgs of LEGO bricks from LEGO Charity with us. During our stay, we found schools and orphanages to which we could donate the LEGO bricks.
In one case, however, the LEGO bricks could be used for purpose more serious than pure entertainment. I was fortunate enough to meet Dr. Marieke Dekker, currently the only paediatric neurologist in all of Tanzania – a country with a population of almost 50.000.000.
Dr. Marieke Dekker works with hundreds of children with serious neurological disorders in her work. As a neurologist she uses the LEGO bricks to test fine motor skills and cognition of the children. She is able to asses their development and at the same time give them a once in a lifetime gift that brings great joy. Many Tanzanian children have never seen, let alone owned, toys before:
According to Dr. Marieke Dekker, “LEGO bricks are a great success, especially here, dealing with children suffering from neurological disease. Neurological conditions are often well visible and they are known to cause stigmatisation in African society – it is a huge social problem.”
The stigmatisation of these conditions, even by family members, complicates many children’s access to care. As Dr. Marieke Dekker points out, cerebral palsy is the most common paediatric neurological disorder in Africa. The disease is primarily caused by poor perinatal circumstances and healthcare. The severeness of cerebral palsy is varying results in cognitive, behavioural and learning disabilities. Children with less severe cerebral palsy have proved to be a very successful target group for LEGO bricks.
The LEGO bricks allow doctors like Marieke to assess motor skills, as it “‘breaks the ice’ in the patient-therapist relation and the ultimate joy is to be given the toy upon going home.” says Marieke.
In many cases, the cerebral palsy can be devastating, rendering a child dependent on care around the clock. This group is unfortunately also very common in Africa, mostly concerning school-age children with spinal cord problems. Due to dangerous traffic, falling from trees (harvesting fruits, a major part of African diet), tuberculosis and other infectious diseases, a disproportionate number of children are paraplegic and wheelchair-bound for life.
“Since there is no rehabilitation medicine in Tanzania, they remain in-patients until the family cannot pay the hospital bill anymore, or until they die from pneumonia or infected pressure sores. Many of these children were given LEGO bricks. They built, rebuilt, remodelled and rearranged… it gave them and their caretakers a spark of joy in a circumstance of misery.” says Marieke Dekker.
Marieke’s patients truly benefit from using the LEGO bricks in the clinic professionally as well as psychologically. It means infinitely much to children to whom such toys would never be affordable, let alone available.
Marieke, the EWH DTU chapter, and I wish to continue this collaboration by bringing LEGO bricks with us to the Summer Institute in Tanzania in years to come!
All photos were taken and published in this article with consent from patients and parents.